Seriously?
Seriously.
The month has been fairly uneventful for Emma as far as cancer is concerned. She finished the second round of interim maintenance like a super star. Her hair is coming in like soft baby fluff.
Earlier today she got a blood draw and her counts are good enough to start maintenance tomorrow. It will be a pretty big day... we'll learn which track of the study she will be on. That determines the dosing and timing of her chemo over the next couple years.
This afternoon, though, Emma broke her leg.
She was playing, put her right foot into the recliner between the footrest and seat, then stepped on the footrest and put it down on her own leg, fell over onto it adding pressure, and, well...
Screaming ensued. Emma hasn't really reacted to pain much since cancer; she just gets along with stuff that she can handle in a way that is atypical for a 5-year old. The screaming didn't go away and sounded hurt, rather than offended. I was pretty quick to decide on a visit to the after hours kid care where they are beginning to recognize us. The x-ray shows a busted tibia.
She came home with a splint. Tomorrow while we are already at Primary Children's for clinic and a lumbar puncture, we'll see the orthopedist as well.
And here is another great picture of Emma's photo shoot in February because she's so stinkin' cute.
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Our Story
If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.
ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6
12/12/15
ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6
12/12/15
Thursday, May 29, 2014
Busted -- Again
Labels:
Broken Bone,
Interim Maintenance,
Photos,
Xray
Friday, May 2, 2014
In clinic
A month has passed since my last post.
Emma is doing great. The cast came off yesterday.
There isn't much to report about the month. Today she had both Methotrexate and Vincristine by IV and also intrathecal methotrexate. Her ANC is 1900 and she has gone to church. The little bit of hair is starting to grow.
Initially, there was so much to say. Cancer was such a shocking change to our lives and presented such a paradigm shift. Now a month has passed with not much. This is normal, now.
I have started reading David and Goliath by Malcolm Gladwell. It contains a chapter about the pioneering oncologist who developed much of the protocol that Emma is taking. Truly fascinating and horrifying and empowering to learn.
I mentioned it to Doug, Emma's oncologist, and he recommended another book, The Emperor of all Maladies.
I couldn't emotionally take reading about cancer a few months ago; but now I am eager to get the book Doug recommends.
Labels:
Chemotherapy,
Clinic,
Hair,
Interim Maintenance,
Reading
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