Our Story

If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.

ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6

12/12/15
Showing posts with label Echocardiogram. Show all posts
Showing posts with label Echocardiogram. Show all posts

Wednesday, September 25, 2013

USB Port, Lumbar, Support

First off, we love love love the love notes that are pouring in. That is very sustaining and strengthening stuff.
Yesterday Lizzy visited,  today Tommy came up for a bit. He was not really comfortable with all of it; but he did like the buttons that adjust the hospital bed.
Emma had an echocardiogram today to provide a baseline measure of her heart.  Later she got her IV port,  which is truly like a USB. medicine in, blood out. Whatever is needed, cross platform.
While she was under,  they did a lumbar puncture  to get spinal fluid for testing and they also gave Emma her very first dose of chemotherapy.
Officially,  tomorrow is day 1.
Clinton and I are trading nights at the hospital.  Tonight at about 10:15 I arrived home. The mail was in, the front door repaired,  my dishes washed, my kitchen cleaned, the trash out, toys cleaned up in the family room.
We aren't strong enough to handle this on our own.  We are so grateful that we don't have to.
Tomorrow starts the official Day 1 of treatment.