Our Story

If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.

ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6

12/12/15

Friday, October 16, 2015

The first Last

October 16th was Emma's first Last.

She had her last lumbar puncture, or L. P. or spinal tap. Every three months they put chemo into her cerebral spinal fluid and take a sample out for testing. She gets sedated for that procedure. She did well. The doses of Versed and Ketamine were just right: she didn't react or remember anything, but she also didn't sleep for 90 minutes after the procedure.

I'm hopeful that the next time somebody sticks a needle in her back, it will be an epidural on the occasion of welcoming a grandchild to the world.

She has several more lasts ahead of her. Then after the chemo, there are some medicines that she will still need to take for another six months, and she will still go in for blood checks to make sure everything is OK. It will be a month or two before she gets her port removed, so we still have to treat fevers pretty seriously until then.

It sure is great to be winding down, though. When she was first diagnosed, I couldn't see to the end of the week, much less more than two years. And now here we are 25 months later, and nearly done.