Our Story

If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.

ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6

12/12/15

Thursday, October 2, 2014

Toasty with low counts

Emma got the thermometer to say 102.4 and I had the bag in the car by the time we got through to the nurse.

Her ANC was 100, so we are here. The threshold for hospital admittance is 500. At low levels like this, Emma can't fight off germs.

So far she has been negative for the common respiratory viruses on the panel that they ran. Her blood culture has not grown anything.

That is all pretty good. 

Her temperature won't go down on its own. She can have Tylenol every 6 hours, but by hour 5 or 5 1/2, she is pushing 104. Last night she got to 104.5. 

She is also acting pretty tired and grumpy, but she is in good hands.

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