Our Story

If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.

ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6

12/12/15

Monday, September 30, 2013

She Eats

Emma didn't eat a lot in the hospital. Like really not a lot. A few strawberries, half a chocolate milk, and a nibbling bite of PBJ provided it was cut in squares and not triangles. That's it for a day.
She is taking a steroid, day 6 now, that is likely to make her super hungry all the time. Also it may make her grumpy grumpy.

We started seeing the grumpy in the hospital; but no appetite.

This morning she's had a few glasses of milk with her two cheese sandwiches. While that isn't teenage boy appetite, it's fabulous to have her voluntarily eating.

There is a bit more energy in her this morning. Of course as a rule, good days interweave with rough ones. We'll probably use up a good amount of that energy in a trip to the lab for a blood draw this morning.

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