Our Story

If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.

ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6

12/12/15

Thursday, September 26, 2013

Shout Out to the Laundry Guys

My brother, David, is a maintenance mechanic at Intermountain Healthcare Central Laundry. Once I got a tour of the laundry and David, or Tech as his coveralls say, showed me the machines that do thousands of pounds of laundry an hour. (Sh David, I'm telling the story) Tech tells me that his big rig machines can get your laundry so clean and they handle the craziest, grossest stuff. Emma gets sterile clean stain-free sheets and blankets refreshed every day. Thanks Tech!

We are learning how to take care of her. The chemo drugs are pretty harsh, enough so that if I am handling any biological products (puke, pee, and other stuff that parents just deal with) from her I need to use double-ply nitrile gloves, and that any laundry we wash with her body fluids on it gets two washes in a domestic washer.

To clarify, we don't have to use gloves to touch Emma; she isn't radioactive, nor is she a germ farm or a radioactive mass. Just that her byproducts have that toxic medication flowing freely. And the drugs are heavy-duty stuff.

Also, we learned that some of these medications might make her a little nauseated.

So... Hey David! Emma is sending some truly toxic stuff your way right now.

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