A Lumbar Puncture (LP) is a pretty simple and quick procedure. Primary
Children's Hospital developed a Rapid Treatment Unit (RTU) for quick and
easy procedures under anesthesia that don't require surgical scrubs,
hospital pajamas, or most of the stuff that goes on in OR. It is lower
stress and quicker paced than the same-day-surgery, where we have been
for Tommy's eye surgeries.
When Emma has an LP, she can't eat for
6 hours before the anesthesia. Friday I had NPO written in bold red
letters on the new white board in the kitchen. NPO is a Latin acronym
for "Don't feed that kid."
A little before 9:00 she asked me to
make a quesadilla for breakfast, which I gladly did while Clinton was
packing his lunch. We realized the faux pas after she had eaten half.
RTU
wasn't staffed after 3:00, so oncology had to schedule us in the OR. We
checked in with same-day surgery at 12:30 where they checked vitals and
handed Emma the hospital pajamas for her procedure.
We had our
regular check-up with Doug and Doctor Engle. We discussed temperatures
and fevers. Even when her ANC is high and her immunity is ok, we must be
careful of infections since Emma has a central line: her port. It runs
directly into a major vein and, since it isn't original equipment, is a
special danger for infection.
Chemo is hard on a body, and some
bodies respond to chemo with fevers, even if there isn't infection or
illness going on; but a fever is cause for running blood cultures and
taking strong antibiotics in case it is an infection.
After our
check-up, we headed for the OR. They used the same kind of quick
anesthesia that she gets in the RTU; but that is a place of scrubs and
hair nets and masks and shoe covers. I left Emma and sat in the surgery
waiting room. Though it is a very nice waiting room, I have some tense
memories that followed me in. The last time I was there, Emma was
getting her port.
After the LP, I met Emma in the recovery room
where she watched a movie and sipped at some juice. We got her changed
back into her own clothes and she got a wagon ride to the car, as well
as a new blanket.
This week we don't need an LP. If we can keep fevers down, we have a chance at a whole week away from the hospital.
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Our Story
If you are here, then you are part of Emma's team. Thank you for your overwhelming love and support to Emma, her parents, her sister and brothers. We are so grateful to all of you, and particularly to the incredible staff and volunteers and Primary Childrens Hospital.
ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6
12/12/15
ER visits so far: 21
Anesthesia count: 15
Sedation count: 6 (Sedation isn't as bad as anesthesia - so these are saves from anesthesia)
Blood Transfusions: 6
Platelet Transfusions: 4
Port Access: 87
Hospital Admissions: 6
12/12/15
Monday, November 18, 2013
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